Loom to the Moon • Blue Skye Thinking
This Summer has been a Summer for family and blogging has firmly taken a back seat.
I have hundreds of photos to share of our happy times but have run out of time each day to blog them! I have often been guilty of spending so much time recording the moment, rather than enjoying the moment, but was determined this year, to make the most of our holidays with family and adventures with friends before we move.
Of course we all want to share our fun times and there's a strange sense of achievement when you get a large number of "likes" for a photo but this Summer there's only one thing I want you to like.
If you follow my blog on Twitter, Instagram or Facebook you may have seen me talking about Loom to the Moon, the vision of an incredible little boy.
Skye is 5 and slowly losing his courageous fight against a disease he developed following treatment for an aggressive brain tumour.
Exactly a year ago my sister and I spent a week at our family holiday home in Southbourne and on a sunny day as we sat on the deck of the beach hut we received a call we would never wish on anyone. That our cousin's little boy had cancer.
Sally and I have grown up like sisters and had our sons just months apart from each other. 4 healthy boys who have spent many happy times together and 2 that were due to start school. Except Skye never started school. His uniform was never collected and whilst we've watched with pride as Sammy conquered two milestones this Summer, learning to swim and riding a bicycle, my cousin has watched her darling boy deteriorate.
We were so lucky that they were able to join us for a day at the beach hut this week, a precious day making memories that will need to last a lifetime.
I am often teased in our family for endlessly taking photos. And I always say "You can't get these times back you know!" This has never been more true of this photo of 5 out of the 6 cousins. It breaks my heart to think we won't get the chance again to capture these beautiful children together. And when Sammy kissed Skye goodbye and told him he loved him, I felt like someone had shattered my heart into a thousand pieces.
Skye encapsulates the word brave. He has exceeded all expectations by undergoing intensive radiotherapy without the need for a general anaesthetic, lying completely still during the frightening process, in a mask that covered his whole face and body like something out of a horror film, and displaying a determination to walk again after his surgical procedure.
And it feels terribly and painfully unfair that after everything he has been through, he won't share all the happy times we have ahead in the future.
I want everyone to know how proud I am of Skye, what a remarkable son he is to Andrew and Sally and what an inspirational big brother he is to Jesse.
Most recently they have tried a hyperbaric chamber treatment, to try and halt the progression of the disease, and it was in the chamber which felt like a rocket, that Skye suggested they try and Loom to the Moon.
If any of you reading this have spent the last few months cursing these tiny rubber bands, hoovering them up when your children weren't looking, or popping a few ropy lengths in the bin then I need to ask you a favour! Please send them to Blue Skye Thinking, 59 Hendred Way, Abingdon, OX14 2AW, to help Skye achieve his dream of the world's longest loom band.
Over the Summer Sammy and Ollie have achieved some major childhood milestones. Sammy hopped on a friend's bike the other night and suddenly rode around the garden! Both of the boys have learnt to swim, Sammy blowing us away with 3 lengths of a 15m pool, back to back. Ollie decided this week to abandon his armbands and at just 3, is now confidently swimming a width of a 4m pool. We've had play dates with friends, including Sammy's sweetheart Katy. They are both convinced they will get married one day and this innocence is adorable.
Skye has a sweetheart and it's been heartbreaking thinking of all the things he won't have the chance to do in the future. So my cousin gave him a wedding, with his little beloved Ellie! I think these were the photos that stung the most. Seeing the stark difference in such a short time.